Sunday, May 10, 2009

Mother's Day on a Sunday Night at Chez Princess Margaret

Today was a quiet day. B & C visited - it was really nice to have them come. My flute teacher and co flutist from my York days. As B said though, it is much nicer to visit over sushi then a hospital bed!

Things do seem to be improving. Congestion is looser was finally able to give them a sample for testing. Doubt it will come back with anything though.

My oxygen stats were a little low today so my nurse bumped up the oxygen to 4 litres for the afternoon which helped. I'm back down to 2 litres now. Sure dries the heck out of the mucous lining in my nose. Had some longer nosebleeds last night then usual. My nose tends to bleed anyway when it is dry but the oxygen exacerbates it for sure.

My leg is doing well a bright spot in all this murk. But it's been a royal pain because for some reason the mepiplex dressings that have been so awesome are not sticking or something. So everyday there seems to be leaking and then either wrap up the leg with gauze to stop goop going from everywhere or else the dressing gets changed. Really the dressing should be able to last a few days unless there is excessive drainage from the wound. The draining is not excessive - it is just the dressing doesn't seem to want to stick. Though maybe we had a bum batch of dressings so they switched the boxes but it's still happening. Frustrating.

Mum and Dad have been troupers throughout this. They have been down from Barrie pretty much every day. Only days they haven't were because Dad had rehearsals for his King Edward choir rehearsal and tomorrow Mum has an appointment with a nephrologist. I hope that is nothing major. She has helped me with showers and they been making sure I get my hazelnut creme coffee intervention!

Tuesday I had a shower with mum's help and it just about did me in. I was soooo exhausted after I almost felt worse then when I was admitted Sunday night. But I have since had my third shower today and while it still tires me out, I am managing much better.

P has been really sick. It's taking him as long to recuperate as me. I'm not sure when I will get to see him. I haven't seen him since he left me at emergency on Sunday night. I've been really worried about him. And the rub is that noone to help him plus he has all the little guys to take care of. I feel awful about that. It's not that noone has offered - I should qualify that. Sue and Shirley have both offered but peter hasn't taken them up on any of the offers. I guess maybe he's waiting until I am home. And as for that I have no idea what is happening beyond Monday/Tuesday. Dr. Loach said he wants to do a CT scan either day. But I also need to get off oxygen before I can go anywhere. I certainly hope they don't decide to send me home with oxygen. I'm pretty sure that's not in the plans though - at least I hope.

Work is supportive. Feel bad that I've left JM in the lurch. But, my health is the most important thing right now and I am really trying to focus on that and not worry about other stuff.

This is the ward that Oliver Schroerer was on. He was teaching students right up until the last. Very cool. I hate that someone so talented and vital lost his life to this evil disease.

I think Lupe Rodriguez was on this ward too. The ward I am on is the leukemia ward not the transplant ward.

Did I mention that I have been in what they call droplet isolation? The room has full negative isolation capacity but thank god my situation doesn't warrant that. It would mean a shut door and stuffy room at all times for the most part. Instead visitors (depending on the nurse on duty wear all or part of the next list) have to wear goggles, gloves, mask and gown. It's not about my protection - it's to prevent me from spreading the flu virus to them. The none swine variety para-influenza virus that I have.

I've managed to convince Mum & Dad to get a text messaging package. So Dad was all thrilled because it meant he could go and get a new phone! Mum has done really well with it. I love it - I love being able to fire off a quick message. And it's been great for keeping in touch while they are driving here and knowing where they are and asking if I need or want anything and avoiding talking on the phone and long distance charges!!! I've been following Twitter on my phone - although the first few days I was here I turned it off because it was just too much to cope with. For example, tonight they texted me to say they were stopping at the Mandarin for dinner. Because of course today is Mother's Day. What a crappy place for a mother to spend her Mother's Day. In a hospital helping her daughter cope with being ill. To boot she cooked me a mini-dish of scallopped potatoes with gruyere (yum. I'm supposed to be spoiling her not her taking care of me. So not right.

Okay, done for now. See if my pirate connection is still working!

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